Today I got to spend some time with a very special little boy! Mac - your amazing! http://www.caringbridge.org/visit/cormacmurray It's been a while since first meeting Mac and his family - but today was very nice. Through Conner's illness - I truly have met some incredibly remarkable people and this family is no exception. Mac is 5 years old and has MLD, (metachromatic leukodystrophy) a cruel disease that is slowly taking their son away from them. Like Tay-Sachs or any of the diseases like it - we all battle the same things and share so many of the same emotions. Hopefully I will get to hang out with Mac and his family some more and get some pictures for them! Avery is beginning to sit "a little" - her record for sitting unassisted is 10 seconds! Yeah Avery! Yesterday was 4 sec - today 10 - how many days till we get to 1 minute?? We got a huge chuckle out of her last night. Bath time was SO funny! She loves kicking and splasing everywhere. It was really amusing to watch her! My to do list... find the charger for the camcorder! Oh... and go to the dentist...ugg
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We had an awesome day, too! Thank you for coming, for your company, for your hugs, your understanding -how I wish this 'club' of people who 'get it' did not exist - and we only knew of each other through some cooking class or something. (well, I know you would not want to be in a cooking class either, Desiree!)Looking for a way to sign up for alerts to your blog here...Avery is SO beautiful and we can't wait to hang out again soon. High 5's to the kids from Mac and Colin. Love, aimee
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